May 25, 2013

Sclero Journey

One of the positive things about my journey through scleroderma land is the love and support of my friends and family and the adventures along the way such as the exciting ride with my son who had driven me to my first rheumatologist appointment at UCLA Medical Center. He had a trade show there so I planned to take the AMTRAK Pacific Surfliner train back to San Diego where my daughter-in-law (who has taken hours out if her busy schedule to take me to doctor appointments) would meet me. We raced through rush-hour traffic in Los Angeles in his BMW to try to catch the train to Solana Beach. I think my finger prints are still embedded in the dashboard. We did not make it in time so he hung out with me until the next one came to make sure I got on. My other son who lives in Solana Beach picked me up after midnight with a smile on his face despite the inconvenience. During a recent visit with my daughter, she spent hours working on my feet to remove hard skin and calluses. It made me feel human again. A close friend has watched over my house for the last six months and also kept my plants watered. My sister in Saint George welcomes me with open arms as I travel through and stay at her home so I do not have to make the trip between central Utah and California in one day. 

These are just a few examples of their love, support and concern that is invaluable and appreciated. It is during difficult times like this when ones priorities fall into the right place and what is most important is reinforced.

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